Chapter 1

The Management and Treatment of Down Syndrome and Alzheimer’s Disease: Political and Ethical Issues

Betsy Pohlman


This chapter explores the entangled histories of Down syndrome and Alzheimer’s disease, advocacy endeavors, parental experimentation with cognitive therapies, and uneasy relationships between parents, medicine, and science. The goal is to raise questions to elicit discussion for parent advocates, who may find themselves at the crossroads of new possibilities for people with Down syndrome. It is drawn from anthropological ethnographic research centered on social advocacy for both Down syndrome and Alzheimer’s disease, conducted from 2006-2010. The author also utilizes historical analysis to enhance understanding of contemporary concerns, and to illuminate the unique position of parents in the treatment of their young and adult children with Down syndrome.

Total Pages: 3-19 (17)

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.Frontiers in Clinical Drug Research - CNS and Neurological Disorders.
.Frontiers in Clinical Drug Research-Dementia.
.Advances in Alzheimer Research.
.Recent Advances in the Treatment of Neurodegenerative Disorders.
.Advances in Alzheimer Research.
.Cellular and Molecular Biology of Autism Spectrum Disorders.